Branford family supports proposal for universal infant screening

(WTNH) -- State lawmakers from both political parties are joining together to support a bill that would require universal infant screening for Adrenoleukodystropy commonly known as ALD.

Jack and Jean Kelley and their 24-year-old son Brian of Branford went to the Capitol today to help announce the bi-partisan proposal.

The rare genetic disorder causes very rapid degeneration of the nervous system in young boys but with a relatively in-expensive test can be treated early to avoid most of the severe complications.

"We started 'Brian's Hope' in honor of our son Brian. We hope that he will not live in vain with the challenges he has faced and this can be his legacy to pass this on that other boys will not have to suffer the affects of the disease," said Jean Kelley.

Advocates of the universal ADL infant testing say that the screening can save millions in medical costs down the road with prevention.   The disease is said to affect 1 in about 20,000 births.

For more information on 'Brian's Hope,' visit

Copyright 2014 WTNH TV. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.


Political Pulse

Did you like this article? Vote it up or down! And don't forget to add your comments below!

Like It
Don't Like It


We welcome your thoughtful comments. Be the first to participate in the discussion. All comments will display your username and avatar.


Add a Comment

Sign in or join now to post a comment. All comments will display your username and avatar.


Connecticut (change)

Connecticut has 169 cities and towns, which serve as the fundamental local political subdivision of the state. Connecticut is the 5th of the original thirteen United States.
Offices & Officials

Governor: Dan Malloy
Lieutenant Governor: Nancy Wyman
Attorney General: George Jepsen
State Treasurer: Denise L. Nappier

Contacting the White House and Congress

Click the links below to get in touch with your elected officials.